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I have been contacted by the folks running this study. It looks to be very important foundational work to help folks studying BMD to have criteria for success. As you all know we're all a bit different and this is often an excuse as to why there aren't a lot of BMD human trials. So if you feel up to it, please participate, it will help open up more studies for us.
You can also see more about what they are doing on the Nationwide Childrens Hospital in Columbus Ohio at the following link: www.nationwidechildrens.org/center-for-gene-therapy
Or check out the attached description of the studies.
Kevin
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