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Name: Rob
City: Toronto
State: Ontario
Country: Canada
Year of Birth: 1984
Onset: 12
Diagnosis: 10
Deletion: 45-48
Frame: In-Frame
Cardiac Problems?: NO
Ambulatory Problems?: NO
Respiratory Problems?: NO
Comments:
I really think a treatment will be coming very soon. Never give up! hold your heads high!! We are all very lucky to be living in an age where there is so much technology and research being done to help us. There is always more that could be done and hopefully more will be done. I used to be so active when I was younger. I used to ride a bike, play baseball, bowl, go for long walks, roller blade, run, jump, go upstairs with ease. I can't wait for the day that I can do even one of those things again. I also hope everyone else gets a chance to do things they used to be able to do too!! |
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DREAM BIGGER!!! |
