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Just sharing this somewhat newer resource for you all. The site asks that you register and add your information to their database. It looks like a compliation of several groups - finally under one roof. Lots of up-to-date information that can be printed off easily and taken to say school meetings, doctor appointments, etc.
Check it out!
https://www.duchenneconnect.org/ |
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Tanya mom to two BMD boys
Parent Chat Moderator |
