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 Subject :signs of a manifested carrier.. 2007-10-04 02:29:52 
twinsmom
Expert
Joined: 2007-03-06 00:57:21
Posts: 51
Location: 
Can somone please explain manifested carrier to me? I am 44 years old never had any real trouble (although never been good at sports either). I have twin 12 year old boys who have BMD. I am a carrier. what physical signs might I (or my daughter) have that would suggest manifested carrier? :oops: thank you
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 Subject :.. 2007-10-04 11:15:52 
Roxanne
All Star
Joined: 2007-04-13 22:09:01
Posts: 370
Location: Canada
Hi there, I'm a carrier of BMD, not sure if you would call me a manifested carrier :roll: I have noticed that I'm not able to do or keep up like I use too. Before our BMD diagnosis I just thought it was due to getting older etc.... I don't like stairs, my leggs get really tired by the time i'm finished them. Walking up hills, my leggs feel very heavy. This is what really got me thinking about manifested carriers, a couple of months back my son & I were at a wedding and we were dancing, well after a couple of dances with my son who has BMD, I wanted to stop & rest; my leggs were really tired... :? I remember not too many years back I could dance all night & never get tired. I recently had a EKG & an Echocardiogram completed and is waiting for the results, I don't think anything will show up but it's best to have this checked I guess just in case... I'll let you know the results when I get them.
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Roxanne Mom to Nicholas (10) with BMD
 Subject :.. 2007-10-06 17:50:33 
joanne
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Joined: 2007-03-21 05:39:41
Posts: 54
Location: 
 
hi carrie, how you doing?hope you are ok. :) carrie i have sent you an email but thought i would look around for you on this topic..i have found this link for you http://www.muscular-dystrophy.org/information_resources/factsheets/medical_conditions_factsheets/manifesting.html i got it from the md campain website. i am not sure about manifested carrier as i have never been given information on this. as you know i am a carrier of bmd but all the time we were going through the process of tests etc nothing like this was ever mentioned to me...i am due back at newcastle next month to the muscle clinic i will enquire about a manifested carrier. take care joanne
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 Subject :.. 2007-10-07 20:24:40 
twinsmom
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Joined: 2007-03-06 00:57:21
Posts: 51
Location: 
thanks joanne!
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