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I Heather, have you heard about the Bowen technique of physiotherapy? I'm a 41 year old BMD sufferer and find helpful. On the Bowen website it indicates that it is used on MD sufferers. I am almost wheelchair bound, but find the technique helps to maintain my range of movement in my shoulders, neck and hips. Try website: http://www.bowen-technique.co.uk/. Hope this helps you in some way.
Regards
Steven (The Ferret)
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