I have a very hard time trying to bend over at the sink to wash my hands, wash my face and brush my teeth. Curbs everywhere prevent me from getting into certain facilities or stores. I also have a hard time reaching my face, I struggle to get the spoon up to my mouth. Scooting in and out of chairs is a hassle. Oh and doing laundry is a horror!

Today I got the cheese grater out of the drawer turned around.and it felt like my knee gave out. The cheese and the grater went flying and I fell on my hip and elbow. Now my chest and heart hurt.

Hey!
I feel your every word! My worst daily duty is to get out of bed at the moment. Man, my arms are more and more weakened each week it seems. I have had alot of adjustments to my home and carry on with my daily life pretty good but the worst thing about this disease is that it never lets you settle, it keeps changing you and what you can do. At the moment as I wrote it is getting out of bed. But at the same time, when I cant take that no more, I ask for help, get an aid and get used to that specific situation. If I try to be positive about this I would say life never gets boring this way, there is always change around the corner ;) 

You are never alone. Remember that! :)

//Niclas