A friend of mine from the University of Sydney in Australia is doing this fantastic research into ways to improve quality of life for people with muscular dystrophy.
It would be wonderful (and greatly appreciated) if you could help, by undertaking a survey.
www.nmdsurvey.com
The survey will include the social impact of muscular dystrophy; relationships between people with muscular dystrophy and their health care provider and the impact muscular dystrophy has on sexual relationships and lifestyle.
The data will be analysed in a number of ways and results will be published in several well respected international academic journals.
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